Search results Search for: Search Refine your results by duration: Any Under 5 mins Under 20 mins Over 20 mins Sort by: Relevance Views Date Overcoming Patient Recruitment Challenges in Rare Disease Trials Whitney Taynton, Donna Dail, Margaret Alege Rare diseases are thought to affect up to 446 million people worldwide. With more than 7,000 rare diseases, most of which are genetic, it’s vital all ... 2 months ago | 60 mins The Expanding Role of RWE in Rare Studies Premier Consulting – Shari Medendorp, MPH, President, and Nach Davé, RPh, MS, Vice President, Development Strategy Real-world evidence is increasingly important in drug development as the medical and pharma communities recognize the data’s potential for predicting ... 2 months ago | 57 mins The Expanding Role of RWE in Rare Studies Premier Consulting – Shari Medendorp, MPH, President, and Nach Davé, RPh, MS, Vice President, Development Strategy Real-world evidence is increasingly important in drug development as the medical and pharma communities recognize the data’s potential for predicting ... 4 months ago | 63 mins Medical Informatics and Rare Disease: a bridge between two worlds Holger Storf, Dennis Kadioglu, Josef Schepers, Michéle Zoch, Joanne Hackett In this webinar, sponsored by IQVIA, speakers from The Medical Informatics Group at the University Hospital Frankfurt and the Collaboration on Rare Di... 7 months ago | 65 mins Ethical Issues in the Dissemination of Genomic Science: Perspectives from GIM Dr. Kyle Brothers, MD, PhD International collaborations have long been an important element of genomic science. In recent years, however, a number of factors have driven remarka... 2 months ago | 57 mins 희귀 질환 대상자 모집: 갈수록 경쟁이 심화되는 연구 환경에서 등록 장애물을 해결하고 임상시험을 차별화하는 방법 Premier Research – Jackie Brown, 부사장, 희귀질환 이 웨비나에서는 유전자 치료제 개발시 국제 규제(Regulatory) 환경에 맞춰 방향을 읽는 법 및 다양한 현지 규제(Regulatory) 환경을 고려하여 성공적인 임상시험 전략을 개발하는 법에 대해 다루고자 합니다. 또한, 제품 개발 및 승인 프로세스를 간소화할 수... 4 months ago | 48 mins Drug development and how best to work with specialised Rare Disease networks Dr Jean-Meidi Alili, senior pharmacist at G2M; Dr Jeff Keefer, IQVIA; Dr Joanne Hackett, IQVIA; Dominic Tyer, pharmaphorum This webinar will take place on Tuesday 9th November at 12:00 pm GMT / 1:00 pm CET. Far more common than initially thought, rare disease treatments r... 1 year ago | 61 mins Rare Disease Research: Conducting Clinical Trials Where the Patients Are Alison Sampson, Hanna Wide, MSc Clinical Trials in Rare Diseases: Where to find Rare Disease Patients Working with sites where the Patients are Supporting the Site Recruitmen... 3 years ago | 47 mins Natural History or Registry Study? Conducting Rare Disease Research Angi Robinson and Juliet Moritz Sound drug development requires a comprehensive understanding of the disease being treated. To design reliable clinical studies and achieve meaningful... 3 years ago | 61 mins Operational & Regulatory Factors in Cross-Border Enrollment in Rare Disorders Hanna Wide Director, Program Delivery Rare Diseases & Pediatrics at Premier Research Researchers are more focused than ever on finding treatments and cures for rare diseases, encouraged by a regulatory environment that is increasingly ... 2 years ago | 19 mins Load more
