Designing unique patient solutions in rare disease

Presented by

Clare Bates

About this talk

Living with any chronic health condition can be demanding, but rare diseases bring a unique set of challenges for patients. These can range from diagnosis difficulties to limited information and support, a lack of knowledge - even within medical services - and social stigma. Such challenges negatively impact patients and carers - preventing the best possible health outcomes from being achieved. This webinar will help pharmaceutical companies understand how they can better address the unmet needs of such patients. On Tuesday 15 July at 2pm this free event will feature a health psychology specialist and a patient research expert, who will discuss how a ‘belief-based’ support approach can be delivered. The webinar will also investigate how a long-term strategy that accommodates the changing support needs of individual patients from childhood to adulthood can be delivered at a global level – while still resonating at an individual level for patients.

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