Professor Mick Peake, Leicester University, Thomas Lawrence, NICE, Yoshiko Cook, Adam Reich, IQVIA, Paul Tunnah, pharmaphorum
The NHS’ globally unique health data ecosystem has the potential to improve health outcomes. With around 363,000 new cancer cases in the UK every year, oncology data can further be leveraged to help researchers make more informed decisions about medicines discovery, research and value, to improve cancer outcomes and patient experience.
But how do we efficiently access these evidence sources as governance and privacy concerns increase?
Foundations are being put in place, in the UK and across the globe. In addition to healthcare organisations (which at the UK level include the establishment of the national institute for health data science - Health Data Research UK, and NHSX), information governance is key, as is alignment to UK and EU regulations such as the July 2019 DHSC Framework for the Value of NHS Research and GDPR.
Meanwhile, as NICE is increasingly mobilising real-world evidence, it’s critical that the right data is made available to inform reimbursement decisions, providing actionable evidence for healthcare technology assessments.
Innovative approaches are also being developed in order to improve appropriate data access. This includes simulated data for generating real-world insights as well as DATA-CAN, the Health Data Research Hub for Cancer working in partnership with patients and the public, to make high-quality health data more accessible for cancer researchers, clinicians and other health professionals.
The Unlocking health data to improve oncology outcomes webinar, in association with IQVIA, will take place on Tuesday 28th April from 13:00-14:00 GMT and will look at how oncology data can be used safely and appropriately to:
•Drive more oncology research
•Make informed decisions from drug research, drug discovery through to drug value
•Encourage collaboration across healthcare stakeholders – payers, clinicians, researchers, industry, with the patient at the centre
•Improve care and patient outcomes